Condition: Double Above-Knee Limb Loss
Solution: ComfortFlex® Adapt self-adjustable socket system
In early 2017, nine-year-old Lilly Biagini became one of the first amputees in the world to be fit with the new ComfortFlex® Adapt, an adjustable socket technology that empowers patients to control their own prosthetic socket fit with the turn of a dial. Lilly, who was born with a rare muscular condition that led her to choose to amputate both legs above-the-knee in 2014, has been walking independently for more than three years now. With her original prosthetic sockets, Lilly had to remove her prosthetic legs to change the amount of "socks" covering her residual limb to ensure a comfortable fit with her prostheses. With the ComfortFlex® Adapt, Lilly is now able to adjust the fit of her prosthetic legs by herself for the first time, providing Lilly with the independence she needs to continue on as an energetic nine-year-old.
Sadly, after wildfires destroyed Lilly Biagini and her mother Jessica's Santa Rosa, California home in October 2017, they lost everything in it, including Lilly's prosthetic legs. For Lilly, the loss of her independence and mobility was devastating. NBC Nightly News with Lester Holt and The Today Show featured the story of how Lilly's Hanger Clinic prosthetic team in San Francisco, in partnership with SPS National Labs in Orlando, and manufacturers Endolite and College Park, were able to fit Lilly with new legs and get her back on her feet.
View The Today Show segment here
Lilly and Jessica, who have benefited from the kindness of strangers around the country, also shared their story of survival on The Ellen DeGeneres Show, where they received several surprises: a new car for Jessica and presents for Lilly, including a personalized peer support doll who has prosthetic legs just like Lilly. The doll, donated by a family friend, was modified and fitted by Hanger Clinic and National Labs teams coordinating across the country to ensure the doll made it to Lilly in time for the surprise.
View the Ellen DeGeneres Show segment here